Tyler’s physical symptoms include: stunted growth, a large distended forehead, a broad flat nose and swelling of the liver and spleen.
The biggest factor for Tyler up until January 2009 was his mobility as his bones are very weak. Just hours before a scheduled back surgery in January however, Tyler was diagnosed with kidney failure so the back surgery was cancelled and Tyler now must undergo dialysis treatment 4 times a week at CHEO until a kidney transplant can be done in 1 to 4 years.
A Message from Tyler’s Parents
In the words of Tyler’s mother, Ida…”It is so fortunate that such a fatal disorder is so rare. Unfortunately it also means that awareness and funding for research is very limited. That’s why we ask for your help. We hope our collective annual attention to this disorder will bring solution for Tyler and children like him. There is no way to ever say thank you for helping to save our child. If you can imagine how you would feel to be Tyler’s parents, then you can imagine why we ask for your help. Thank you for helping to save our child”